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Topic: Help with a gift for my disabled 5 year old niece, please!  (Read 554 times)
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elwynceltic
« on: July 24, 2008 07:38:01 PM »

I have a 5 year old niece who has Schizencephaly. She cannot see, cannot hold anything, can't sit up, eat, crawl, talk, etc... Usually I give her something that vibrates, plays music, or stick with everyone one else and give her an item of clothing. She wasn't supposed to live past a year, and like I said, she is turning 5 Saturday. I'd like an idea of something special to make her, that wouldn't take too long, and hasn't been given to her by everyone else. I thought about a small quilt personalized somehow, but that would probably take me longer than I need it to. Any suggestions?
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JLMS
« Reply #1 on: July 24, 2008 07:44:00 PM »

You said she can't talk, but can she understand? How about making a tape recording of reading some kids books or maybe songs sung by family members?

Animal sounds- birds, kittens puppies.  OH, no clothing. Make her feel special.
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elwynceltic
« Reply #2 on: July 24, 2008 07:47:08 PM »

You said she can't talk, but can she understand? How about making a tape recording of reading some kids books or maybe songs sung by family members?

Animal sounds- birds, kittens puppies.  OH, no clothing. Make her feel special.

No, sadly she can't understand anything either (or so the doctors say, but who really knows if she can't tell us). That's a great idea though, she loves music and laughs when the kids make funny noises while talking to her. Thanks!!
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« Reply #3 on: July 24, 2008 07:52:12 PM »

so I think she can at least understand.
I think the tape sounds like a great idea.
maybe a nice pillow for her head to lay on or for her to lean agains. those can be very personalized and super easy.
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looking for instant coffee from australia or russia made with mustard and champagne.  VIOLET CRUMBLES and VEGEMITE would be welcome swap items!!
midgemommy
« Reply #4 on: July 26, 2008 12:00:12 AM »

Oh goodness.
Screw people who say they can't understand, that's crap. Just because they aren't developmentally on par doesn't mean they're vegetables. If she laughs, she understands.

I would honestly buy audiobooks, on Itunes or whatever. Or buy her a tape recorder and record her families voices saying funny/interesting/sweet things. I know it isn't 'handmade' but if auditory input is one of her only sensory inputs, give her as much control over it as possible. You say she can't hold things, is that because she can't pick things up, or she has not even enough muscle tone to control her hands? Because if she can control her hands (but just isn't strong) I would make a sensory quilt. Just two layers of fabric, quilted into squares, but put plastic in one square, rice in another, stuffing, beans, buttons on one, do some fabric treatments like yo-yos or pleating to make it feel interesting. If she's blind, peicing isn't going to be appreciated, and quilting is the short part. You could put tags on the edge, use a textured fabric, knit/crochet a square, I know there's more.

Good luck!
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